Our guest this week is Miguel Sancho, of Larchmont, NY a journalist and an Emmy award winning TV producer. Miguel and his wife, Felicia Morton, have been married for 16 years and are the proud parents of two; Lydia (13) and Sebastian (9), who was diagnosed with CGD, Chronic Granulomatous Disease, a rare genetic disorder in which white blood cells called phagocytes are unable to kill certain types of bacteria and fungi. People with CGD are constantly at risk of developing bacterial and fungal diseases that can be life-threatening.

Miguel is also the author of: More Thank You Can Handle: A Rare Disease, A Family In Crisis, And The Cutting-Edge Medicine That Cured The Incurable. Miguel is a gifted story teller and he shares his family's chaotic, exhausting, funny, heartbreaking nerve-racking journey in a very authentic way. It's an enlightening and illuminating story all on this SFN Dad To Dad Podcast.

Links:

More Thank You Can Handle: A Rare Disease, A Family In Crisis, And The Cutting-Edge Medicine That Cured The Incurable

CGD Association of America - https://cgdaa.org

Be The Match - https://bethematch.org/

Duke PBMTU Family Support Program - https://dukepbmtfamilysupport.org/

NIH - https://www.nih.gov

Ronald McDonald House - https://www.rmhc.org/

COTA (Children Organ Transplant Association) – https://cota.org/

Immune Deficiency Foundation - https://primaryimmune.org/

Make A Wish Foundation Hudson Valley - https://wish.org/hudson

North Carolina Cord Blood Bank - https://sites.duke.edu/ccbb/

Website – https://www.miguelsancho.net

Email – miguelsancho6464@gmail.com

LinkedIn - https://www.linkedin.com/in/miguel-sancho-b7aa37a/

Special Fathers Network -
SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."

SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.

Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/

Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA

Please support the SFN. Click here to donate: https://21stcenturydads.org/donate/