Transcribed
How To Explain Parkinson's Disease to Family and Friends
Dec 30, 2023 ·
3m 28s
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How To Explain Parkinson's Disease to Family and Friends
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Description
Sharing a diagnosis of Parkinson's with your loved ones can be a difficult and emotional experience. Here are some tips that might help:Before the conversation: - Gather information and resources:...
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Sharing a diagnosis of Parkinson's with your loved ones can be a difficult and emotional experience. Here are some tips that might help:Before the conversation:
show less
- Gather information and resources: Learn about Parkinson's disease yourself so you can answer questions and address concerns. Reliable sources include the Michael J. Fox Foundation, the Parkinson's Foundation, and the American Parkinson Disease Association.
- Decide what you want to say: Do you want to share the diagnosis directly, or ease into it by mentioning some recent symptoms? Do you want to focus on the facts or your personal feelings? Having a script or talking points in mind can be helpful.
- Choose the right setting: Pick a quiet, private space where you can have a heartfelt conversation without interruptions.
- Who to tell: Consider who you want to tell first and in what order. You might start with your closest family members or a trusted friend.
- Be honest and straightforward: Explain that you have been diagnosed with Parkinson's disease. Use simple language and avoid medical jargon.
- Focus on the facts: Briefly explain what Parkinson's is, its symptoms, and how it affects you. Emphasize that it's a chronic, progressive condition, but not necessarily debilitating.
- Be positive and hopeful: Share your commitment to managing the disease and your plans for treatment. Let them know you are optimistic about the future.
- Answer questions: Be prepared to answer questions about your diagnosis, symptoms, and treatment. If you don't know the answer, it's okay to say so and promise to find out.
- Listen to their concerns: Give your loved ones space to express their emotions and ask questions. Be patient and understanding.
- Set boundaries: Let them know how much you are comfortable sharing and if there are any topics you prefer not to discuss.
- Offer reassurance: Let them know that you are not a burden and that you appreciate their support.
- Consider writing a letter or email: If you are feeling overwhelmed, you can write a letter or email to share your diagnosis. This can give you time to collect your thoughts and allows your loved ones to read it at their own pace.
- Invite them to learn more: Suggest that they read reputable resources about Parkinson's disease to gain a better understanding of the condition.
- Seek support: Let your loved ones know how they can support you, whether it's by offering practical help, emotional support, or simply being there to listen. You can also join a support group for yourself and/or your family.
- The Michael J. Fox Foundation: https://www.michaeljfox.org/
- The Parkinson's Foundation: https://www.parkinson.org/
- The American Parkinson Disease Association: https://www.apdaparkinson.org/
Information
| Author | Herb Williams |
| Organization | Herb Williams |
| Website | - |
| Tags |
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