Translating a Chinese heart CT report, the role of social media in saving lives, and the power of validation
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Description
Boots interviews Rob Thornett, a former myocardial bridge patient. They swap stories about their heart surgeries, lessons learned, struggles, and triumphs. This episode is for anyone struggling for any reason....
show moreBe sure to leave a review, subscribe and go to the website to leave Boots a voicemail or drop her an email. :)
Website: The Heart Chamber (theheartchamberpodcast.com)
Transcript: Joyful Beat | The Heart Chamber (theheartchamberpodcast.com)
The Heart Chamber (@theheartchamberpodcast)
Thanks to Michael Moeri for being my right hand man. Michael Moeri - Audio Editor, Podcast Producer and Marketing Director
Thanks to Denise Hardy for your support and believing in me. linkedin.com/in/denise-hardy-30a51086
Music by AudioCoffee
0:00 intro
1:30 Boots explains her reason for bringing Rob onto the Podcast.
2:10 Rob summarizes Boots's story and how they came to know each other.
2:50 Rob tells us about his teaching career and how he always had a nagging "issue" and how many of us Heart Warriors are told we have anxiety
4:20 Rob dives right into the myths of myocardial bridges
6:00 Then, while in China, he began to really struggle
7:40 He rattles through the various ER visits
8:10 He begs for a heart CT and offers to pay in cash at a rural Chinese hospital
9:15 Rob notices there is "note" on the Chinese CT report and pushes for translation
11:10 Rob finds himself infront of a Chinese hospital wondering what to do now with the knowledge that he had a myocardial bridge
12:45 No one found Rob's myocardial bridge in the United States and often patients in the US are not told that myocardial bridges are found
14:00 Boots emphasizs the importance of reading your own doctor's reports after doctor visits
15:00 Rob gets to work trying to find someone in the US to help him
16:00 Stanford is the main team in the US for myocardial bridging
17:30 Rob walks us through how he got insurance back in the States
18:00 Boots shares which arteries were bridged on her heart
20:30 Rob explains the holding pattern he entered as he waited
21:30 Rob begins to deteriorate even as he taught school
23:00 As Rob waits for Stanford, he unsuccessfully pursues robotic surgery
28:00 Side story: Rob shares stories of other patients experiencing the issues with getting diagnosed properly
28:00 Rob finally had surgery at Stanford and walks us through the process
32:10 Boots shares her surgery process during Covid
40:00 Rob goes into the Facebook support group for myocardial bridging
42:30 Boots reflects on getting to wake up every day
44:00 Rob goes back to work after surgery 17 days after surgery!
47:00 Doctors who are doing robotic surgery now with success that have been shared on the Facebook site
49:00 Do not let a doctor do a bypass on your bridge!
52:00 Six months post op until present day
52:30 Endothelial dysfunction explained and how it takes time to heal
55:00 Boots reflects on walking the day after surgery as well as her recovery
57:00 Boots has been in a master class of learning how to listen to her heart
58:40 Mayo would not have unroofed Boots and she pushed back
1:00 Boots feels she's on bonus time
1:02 Rob explains Lipoprotein A and how it affects arteries
1:04 EECP to help expand arteries to stimulate their growth to treat endothelial dysfunction
1:08 The role of social media in saving Boots's life as well as so many others
1:11 Rob's role on the Facebook group site
1:18 Boots talks about the importance of validation and knowing we are not alone
1:25 Stanford believes that myocardial bridging is congenital
Information
Author | Suzanne Boots Knighton |
Organization | Suzanne Boots Knighton |
Website | www.theheartchamberpodcast.com |
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