TSC Talks; Episode 29, Charting a Course Home. TSC Mom, Heather Little, Describes How She's Managed & Overcome Infinite Challenges with TSC.

TSC Talks!

TSC Talks; Episode 29, Charting a Course Home. TSC Mom, Heather Little, Describes How She's Managed & Overcome Infinite Challenges with TSC.

Feb 14, 2019 · 1h 21m 19s

Chapters

01 · Diagnosis-From initial symptoms to receiving official diagnosis

3m 12s

02 · Infantile Spasms Diagnosis, Treatments, Medications & More

11m 2s

03 · Brain Surgery. The process of finding an adequate location, Medicaid approval, post operative recovery & more

23m 22s

04 · Educational Issues, Behavioral Challenges, Further Seizure Episodes

36m

05 · Family Impact. Heather describes impact of chronic stress from TSC challenges, how she got help, the impact on her son,

52m 22s

06 · Recommendations for the Parent/Caregiver, What Heather's up to now with Harmony Aromatics, etc.

1h 9m 27s

Description

From a mismanaged initial TSC diagnosis in her daughter to struggles getting treatment for Infantile Spasms, challenges finding an adequate setting for brain surgery, educational and behavioral issues as well as personal and family impact, Heather Little has experienced much of what TSC care and management involves. She shares honestly in a clear & articulate manner that despite repeated obstacles & frustrations beyond belief, quality of life, peace of mind and hope are possible! This episode has something for all those in the TSC & Special Needs Communities as she touches on most of the experiences one will encounter at some point as they navigate this often uncharted path of TSC management as affected individuals and/or parent/caregivers of loved ones affected. Well worth your time!

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Information

Author	Jill Woodworth
Organization	Jill Woodworth
Website	-
Tags	#autism #brainsurgery #chronicdisease #epilepsy #familysupport #hope #iamtsc #infantilespasms #mentalhealth #parenting #ptsd #raredisease #selfcare #specialneeds #tuberoussclerosiscomplex