Contacts
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every...
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
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Episodes & Posts
Episodes
Posts
17 JUL 2025 · Dr. Lori Quinn and Dr. Jamie Adams share about a new observational study for the HD community, one that you can do from the comfort of your own home! It's called MEND-HD, and you can find out more information https://www.mend-hd.com/.
11 JUL 2025 · Here's the link for a list I made with Amazon Prime Day deals that you may find helpful: https://tinyurl.com/primedayinhd
3 JUL 2025 · Today, we’re honoring the life and legacy of Liv, a beloved HDYO Ambassador. Esme & Gemma join me to talk about mental health, advocacy, and the importance of continuing Liv’s mission.
TW: Discussion of mental health challenges.
26 JUN 2025 · In this episode, Dwight Tapp, MS, PhD, MBA, CCRP, CRCP, FACHE, sits down with Lauren Holder to discuss the INGREZZA® expansion into the treatment of chorea associated with Huntington’s disease for adults and the development of INGREZZA SPRINKLE. Dwight is Associate Medical Director, Neurology, at Neurocrine Biosciences. Prior to joining the Medical Affairs team at Neurocrine Biosciences, Dwight worked in pharmaceutical, medical imaging and clinical trial management companies. He has advanced degrees in psychology, neuroscience and healthcare business administration, and completed fellowships and post-doctoral training in brain aging, dementia and neuroimaging. Dwight has conducted research in Alzheimer’s disease, Parkinson’s disease, tardive dyskinesia and Huntington’s disease.
19 JUN 2025 · To buy Sarah's new book, "This is Me Smiling", please click https://www.amazon.com/dp/B0FC55CH6J?ref=cm_sw_r_ffobk_cp_ud_dp_SDW0KSP1SY2FKCAH7GWP&ref_=cm_sw_r_ffobk_cp_ud_dp_SDW0KSP1SY2FKCAH7GWP&social_share=cm_sw_r_ffobk_cp_ud_dp_SDW0KSP1SY2FKCAH7GWP&bestFormat=true&previewDoh=1.
To find out more about Sarah and to follow her blog, please click https://sarahshdlist.wordpress.com/.
12 JUN 2025 · Gracey shares how HD has become a part of her life since she met her boyfriend, Jake, and how she supports him, making them a united front against HD.
5 JUN 2025 · Lori Jones is the author of Spared: A Memoir of Risk and Resolve. In it, she delves into her personal journey growing up in a family affected by Huntington’s Disease (HD), exploring themes of inherited trauma, caregiving, and ethical dilemmas.
You can visit her website https://lorijoneswrites.com
You can buy her book on Amazon https://www.amazon.com/dp/B0D9HSPVJP?ref=cm_sw_r_ffobk_cso_fm_apin_dp_VYSE1W0NC49QBZEE2R0D&ref_=cm_sw_r_ffobk_cso_fm_apin_dp_VYSE1W0NC49QBZEE2R0D&social_share=cm_sw_r_ffobk_cso_fm_apin_dp_VYSE1W0NC49QBZEE2R0D&bestFormat=true&titleSource=avft-a&previewDoh=1&fbclid=IwY2xjawKtS8dleHRuA2FlbQIxMABicmlkETE3b1FDSEJOUENuU25lbENIAR6EHCIDHiO0nGBpP0qeZoRY4pt-v9psAdHwX4-iyg9DvtIfflkv2vXY3NU6Og_aem_90zb69bktiE8U5GYrTzh0g
22 MAY 2025 · If you would like to join POWERHD, please click https://rare-x.org/huntingtonsdisease/.
15 MAY 2025 · Jimmy Pollard closes HDYO's 2025 International Young Adult Congress with a speech on Empowerment Through Gratitude.
You can watch the full video https://www.youtube.com/watch?v=bq5xedrtIso&list=PLfha5f75-ixIlgOHw6C264K2N6vtGe8LX&index=2
8 MAY 2025 · Lance joins me for our HD Uncut series to share his story and how being proactive about his mental health has made such a difference.
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every...
show more
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
show less
Information
| Author | Help 4 HD Live! |
| Organization | katrina hamel |
| Categories | Health & Fitness , Non-Profit |
| Website | www.spreaker.com |
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